SBRN began in the 1970’s, when parents of children with spina bifida formed self-help groups to address the emotional strain and financial expense of caring for children with special needs. The Spina Bifida Coalition was founded in 1982, with Barbara “Bobbie” Metz as a founding board member and then president. The agency was recognized as exempt under 501(c)(3) in 1987 and became the Spina Bifida Association of NJ in 1992. In 2008, we restructured to become an independent nonprofit organization and our name changed to the Spina Bifida Resource Network.
Our services have always been geared towards empowerment, increasing independence and participation in school, work and community for people living with spina bifida and other disabilities.