Reports & Documents
The mission of the Spina Bifida Resource Network is to empower the lives of people with spina bifida and promote the prevention of spina bifida through advocacy, education, collaboration, public awareness, research and programs.
For over 30 years, the Spina Bifida Resource Network (SBRN) has been serving children and adults with spina bifida and other disabilities throughout NJ. We provide individualized services in the home and community, including care coordination, trainings by nurses, financial assistance and recreational events. Our services are not available through other resources and are not covered by insurance.
SBRN began in the 1970’s, when parents of children with spina bifida formed self-help groups to address the emotional strain and financial expense of caring for children with special needs. The Spina Bifida Coalition was founded in 1982, was recognized as exempt under 501(c)(3) in 1987 and became the Spina Bifida Association of NJ in 1992. In 2008, we restructured to become an independent nonprofit organization and our name changed to the Spina Bifida Resource Network. Our services are geared towards increasing independence and the ability to participate in community activities.