the Spina Bifida Resource Network
SBRN Has New Mission and Vision Statements
We have updated and revitalized our mission and vision to meet the current needs of our community.
Mission – To provide educational resources, social events and advocacy programs that empower people with disabilities and their allies to challenge perceptions, embrace interdependence and live their best lives
Vision – A thriving community where people with disabilities have equitable access to resources and opportunities to optimize their wellness and realize their unlimited potential
Who We Are
The Spina Bifida Resource Network (SBRN) provides services and programs to children, adults and families living with spina bifida and other disabilities in NJ and beyond. We provide peer-led support groups and programs, educational and recreational events, financial assistance, resources and advocacy. Our services and programs are geared towards increasing knowledge, self-care, capabilities and independence, along with building supportive communities.
Spina Bifida Programs & Services
Living with Spina Bifida
Spina Bifida is one of the most common, permanently disabling birth defects in America. It occurs when the neural tube, which forms the spinal cord and vertebral column, does not close completely during the first several weeks after conception. Each year about 1,500 pregnancies are affected by Spina Bifida in the US.
Living with Spina Bifida is different for every person. The spectrum of disability ranges from mild to severe. People with spina bifida often need many surgeries over their lifetime and have lifelong disabilities, including paralysis in the lower parts of the body, mobility challenges, and loss of bladder and bowel control.
Most children with spina bifida can and do live long productive lives, thanks to advanced medical techniques and support systems.
SBRN has resources on numerous topics related to Spina Bifida and living with disabilities.
Spina Bifida News & Events
SBRN’s DERA Fund helps people with emergent needs
Watch our Spina Bifida animation
Join SBRN today