the Spina Bifida Resource Network

The Spina Bifida Resource Network (SBRN) provides services and programs to children, adults and families living with spina bifida and other disabilities in NJ and beyond. We provide peer-led support groups and programs, educational and recreational events, financial assistance, resources and advocacy.  Our services and programs are geared towards increasing knowledge, self-care, capabilities and independence, along with building supportive communities.

Our mission is to empower the lives of people living with Spina Bifida, through:

• Virtual Support Groups & Events
• Financial Assistance
• Health Conversations
• Education & Recreation

Spina Bifida is one of the most common, permanently disabling birth defects in America. It occurs when the neural tube, which forms the spinal cord and vertebral column, does not close completely during the first several weeks after conception. Each year about 1,500 pregnancies are affected by Spina Bifida in the US. 

Living with Spina Bifida is different for every person. The spectrum of disability ranges from mild to severe.  People with spina bifida often need many surgeries over their lifetime and have lifelong disabilities, including paralysis in the lower parts of the body, mobility challenges, and loss of bladder and bowel control.

Most children with spina bifida can and do live long productive lives, thanks to advanced medical techniques and support systems.

SBRN has resources on numerous topics related to Spina Bifida and living with disabilities.