Welcome to

the Spina Bifida Resource Network

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Sept 16-18, 2022

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Who We Are

The Spina Bifida Resource Network (SBRN) provides services and programs to children, adults and families living with spina bifida and other disabilities in NJ and beyond. We provide peer-led support groups and programs, educational and recreational events, financial assistance, resources and advocacy.  Our services and programs are geared towards increasing knowledge, self-care, capabilities and independence, along with building supportive communities.

Spina Bifida Programs & Services

Our mission is to empower the lives of people living with Spina Bifida, through:

Living with Spina Bifida

Spina Bifida is one of the most common, permanently disabling birth defects in America. It occurs when the neural tube, which forms the spinal cord and vertebral column, does not close completely during the first several weeks after conception. Each year about 1,500 pregnancies are affected by Spina Bifida in the US. 

Living with Spina Bifida is different for every person. The spectrum of disability ranges from mild to severe.  People with spina bifida often need many surgeries over their lifetime and have lifelong disabilities, including paralysis in the lower parts of the body, mobility challenges, and loss of bladder and bowel control.

Most children with spina bifida can and do live long productive lives, thanks to advanced medical techniques and support systems.

SBRN has resources on numerous topics related to Spina Bifida and living with disabilities.

Spina Bifida News & Events

Introducing our New Group: The “Virtual Men’s Chat”

SBRN is excited to announce our new virtual peer-support group for men with disabilities. The "Virtual Men’s Chat" is a monthly tele-support group for men of ...
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SBRN Receives $21,200 Quality Of Life Grant from the Christopher & Dana Reeve Foundation for Our “Empowered Conversations: Virtual Speaker Series”

SBRN is proud to announce that it has been awarded $21,200 as part of the Christopher & Dana Reeve Foundation National Paralysis Resource Center (NPRC) 2021...
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SBRN’s Community Fund helps people with emergent needs

SBRN has funding to help people living with spina bifida in New Jersey who are experiencing financial difficulties due to the cost of emergent or basic needs. ...
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