the Spina Bifida Resource Network
SBRN and the Coronavirus:
The health and safety of our SBRN families, friends and supporters is always our priority. We are monitoring the ever-changing news, resources and advocacy opportunities regarding the coronavirus pandemic (COVID-19) so that we can all stay informed and healthy. We have prepared a Resources Page regarding coronavirus with National, New Jersey, Disability-related and Mental Health Information, which we will be regularly updating. During this time the office will be closed, but we will continue to be available by phone, email, and texts. Be safe and stay well.
Who We Are
The Spina Bifida Resource Network (SBRN) provides services and programs to children, adults and families living with spina bifida and other disabilities. We provide individualized services in the home and community throughout New Jersey. Our services and programs are geared towards increasing knowledge, self-care, capabilities and independence.
Spina Bifida Programs & Services
Living with Spina Bifida
Spina Bifida is one of the most common, permanently disabling birth defects in America. It occurs when the neural tube, which forms the spinal cord and vertebral column, does not close completely during the first several weeks after conception. Each year about 1,500 pregnancies are affected by Spina Bifida in the US.
Living with Spina Bifida is different for every person. The spectrum of disability ranges from mild to severe. People with spina bifida often need many surgeries over their lifetime and have lifelong disabilities, including paralysis in the lower parts of the body, mobility challenges, and loss of bladder and bowel control.
Most children with spina bifida can and do live long productive lives, thanks to advanced medical techniques and support systems.
SBRN has resources on numerous topics related to Spina Bifida and living with disabilities.
Spina Bifida News & Events
SBRN’s DERA Fund helps people with emergent needs
The 2020 Empowerment Retreat for Adults with Disabilities is Virtual this Year!
Watch our Spina Bifida animation
Join SBRN today