Welcome to

the Spina Bifida Resource Network

SBRN and the Coronavirus:

The health and safety of our SBRN families, friends and supporters is always our priority.  We are monitoring the ever-changing news, resources and advocacy opportunities regarding the coronavirus pandemic (COVID-19) so that we can all stay informed and healthy.   We have prepared a Resources Page regarding coronavirus with National, New Jersey, Disability-related  and Mental Health Information, which we will be regularly updating. During this time the office will be closed, but we will continue to be available by phone, email, and texts.  Be safe and stay well.

SBRN Contact Information

Who We Are

The Spina Bifida Resource Network (SBRN) provides services and programs to children, adults and families living with spina bifida and other disabilities in NJ and beyond. We provide peer-led support groups and programs, educational and recreational events, financial assistance, resources and advocacy.  Our services and programs are geared towards increasing knowledge, self-care, capabilities and independence, along with building supportive communities.

Spina Bifida Programs & Services

Our mission is to empower the lives of people living with Spina Bifida, through:

Living with Spina Bifida

Spina Bifida is one of the most common, permanently disabling birth defects in America. It occurs when the neural tube, which forms the spinal cord and vertebral column, does not close completely during the first several weeks after conception. Each year about 1,500 pregnancies are affected by Spina Bifida in the US. 

Living with Spina Bifida is different for every person. The spectrum of disability ranges from mild to severe.  People with spina bifida often need many surgeries over their lifetime and have lifelong disabilities, including paralysis in the lower parts of the body, mobility challenges, and loss of bladder and bowel control.

Most children with spina bifida can and do live long productive lives, thanks to advanced medical techniques and support systems.

SBRN has resources on numerous topics related to Spina Bifida and living with disabilities.

Spina Bifida News & Events

Are you in need of masks?

SBRN has acquired packages of 5 white cloth masks from the U.S. Department of Health & Human Services which we can mail to households. The masks are FR...
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SBRN’s DERA Fund helps people with emergent needs

We are pleased to announce that SBRN has funding to help people living with spina bifida in New Jersey who have emergent needs during the pandemic.  The SB...
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