is one of the most common, permanently disabling birth defects in America. It occurs when the neural tube, which forms the spinal cord and vertebral column, does not close completely during the first several weeks after conception. Each year about 1,500 pregnancies are affected by Spina Bifida in the US.
Living with Spina Bifida
is different for every person. The spectrum of disability ranges from mild to severe. People with spina bifida often need many surgeries over their lifetime and have lifelong disabilities, including paralysis in the lower parts of the body, mobility challenges, and loss of bladder and bowel control.
Most children with spina bifida can and do live long productive lives, thanks to advanced medical techniques and support systems.
SBRN has resources
on numerous topics related to Spina Bifida and living with disabilities.