WELCOME TO

THE SPINA BIFIDA RESOURCE NETWORK

About SBRN

The Spina Bifida Resource Network (SBRN) is dedicated to enhancing the lives of individuals with Spina Bifida through advocacy, education, and support services. Our mission is to provide educational resources, social events, and advocacy programs that empower people with disabilities and their allies to challenge perceptions, embrace interdependence, and live their best lives. 

For more information about SBRN and how we support the community, please contact us at info@thesbrn.org of call us at 908-782-7475. We are here to help you with your questions, connect you with resources, and welcome you into our network. 


SBRN’s 2026 Empowerment Online Auction is Almost Here!

Get ready to shop, bid, and support a great cause! SBRN’s 2026 Empowerment Online Auction runs Monday, November 9 through Sunday, November 22.

Whether you’re getting a head start on your holiday shopping or looking for something special for yourself, there’s something for everyone!

This year’s auction features a variety of exciting items, including:

  • Restaurant and shopping gift certificates

  • Sports tickets and entertainment experiences

  • Theater and show tickets

  • Activities, special experiences, and more!

Every bid makes a difference! Proceeds support the Spina Bifida Resource Network’s programs and services, including educational resources, social connections, advocacy, and empowerment opportunities for individuals and families living with Spina Bifida and other disabilities.

Ready to take a look? You don’t need to register to browse the auction items. Visit our auction website, explore what’s available, and find something you love!

Auction Dates: November 9–22, 2026

Browse the auction: https://new.biddingowl.com/SBRNonlineauction

Thank you for supporting SBRN and helping us make a difference in our community. Happy bidding!


Expect More: SBRN’s 2026 Live Your Best Life Empowerment Retreat

Registration now open! Click here for event details and registration.

Early Bird Registration will be available for a limited time, with the deadline of Tuesday, October 13

Join us November 13–15, 2026, for a weekend of connection, empowerment, learning, and community!

SBRN is excited to announce the return of our Live Your Best Life Empowerment Retreat, a special weekend designed for adults with disabilities to connect with peers, build skills, share experiences, and explore ways to live their best lives.

This year’s retreat will take place Friday, November 13 through Sunday, November 15 at the Hyatt Regency Morristown, NJ, with a hybrid option available through Zoom.

The weekend will feature presentations, activities, and discussions focused on topics including advocacy, health and wellbeing, disability rights, relationships, independence, and more. Most importantly, the retreat provides an opportunity to connect with others who understand the experiences, challenges, and possibilities of living with a disability.

NEW THIS YEAR: UNSTOPPABLE Teen Program!

For the first time, SBRN is excited to offer UNSTOPPABLE, a special half-day program for teens ages 13–20 on Saturday, November 14.

This pilot program will give teens an opportunity to connect with peers, participate in interactive activities, build confidence and leadership skills, and explore topics related to self-advocacy, communication, decision-making, and the transition toward adulthood.

We are excited to introduce this new program and create an additional space for the next generation of young people with disabilities to connect, learn, and recognize their own potential.

Hotel Information:
The in-person retreat will be held at the Hyatt Regency Morristown, 3 Speedwell Avenue, Morristown, NJ.

Find additional hotel and room reservation information here

Interested in Supporting the Retreat?

There are several ways to support the 2026 Empowerment Retreat, including sponsorship opportunities that help make this weekend possible for participants.

Your support helps SBRN provide accessible programming, meaningful educational experiences, and opportunities for connection and empowerment.

Sponsorship opportunities are available here now. 

We look forward to bringing our community together this November!

Expect More. Connect More. Live Your Best Life.

Questions? Contact info@thesbrn.org.

Introducing "Unstoppable" - A New Teen Program

We are excited to launch Unstoppable, a new pilot program created especially for teens ages 13–20 with Spina Bifida and similar disabilities.

Unstoppable is a peer-based program designed to provide a welcoming, supportive space where teens can:

  • Build friendships and connect with others who share similar experiences
  • Grow confidence and independence
  • Strengthen self-advocacy skills
  • Support their emotional well-being
  • Try new activities in a safe, judgment-free environment

📅 Next meet up- TBD 

Registration is required, and must be completed by a parent or guardian. 

👉Click here to download the registration information.

Questions?

Email: info@thesbrn.org

Phone: 908-782-7475

Program Leader: Andrea Bachmann-Brady -570-234-6957 or email:  onecrazygreek1970@yahoo.com

We are thrilled to bring this opportunity to our community and look forward to seeing teens connect, grow, and thrive.

WHO WE ARE

The Spina Bifida Resource Network (SBRN) provides services and programs to children, adults and families living with spina bifida and other disabilities in NJ and beyond. We provide peer-led support groups and programs, educational and recreational events, financial assistance, resources and advocacy. Our services and programs are geared towards increasing knowledge, self-care, capabilities and independence, along with building supportive communities.

SPINA BIFIDA PROGRAMS & SERVICES

Our mission is to empower the lives of people living with Spina Bifida, through:

LIVING WITH SPINA BIFIDA

Spina Bifida is one of the most common, permanently disabling birth defects in America. It occurs when the neural tube, which forms the spinal cord and vertebral column, does not close completely during the first several weeks after conception. Each year about 1,500 pregnancies are affected by Spina Bifida in the US.

Living with Spina Bifida is different for every person. The spectrum of disability ranges from mild to severe.  People with spina bifida often need many surgeries over their lifetime and have lifelong disabilities, including paralysis in the lower parts of the body, mobility challenges, and loss of bladder and bowel control.

Most children with spina bifida can and do live long productive lives, thanks to advanced medical techniques and support systems.

SBRN has resources on numerous topics related to Spina Bifida and living with disabilities.

SPINA BIFIDA NEWS & EVENTS

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EMPOWERMENT ZONE

SBRN's Newsletter

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WHAT IS SPINA BIFIDA

Watch our Spina Bifida animation

Great Deals. Good Deeds

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