2011 Recap: SBRN Receives a Reeve Foundation Grant Towards an Accessible Kids on the Move Program


Flemington, NJ: (AUGUST 2, 2011) The Spina Bifida Resource Network (SBRN), a 501 c 3 organization that services children, adults and their families who live with Spina Bifida in New Jersey and Metro New York announced today that it has been awarded a Quality of Life Grant through the Christopher and Dana Reeve Foundation in the amount of $9,000 towards their Kids on the Move (KOM) program. The Reeve Foundation’s Quality of Life Grants are awarded twice yearly to non-profits dedicated to improving the lives of those living with paralysis.

The Kids on the Move (KOM) is a series of six events throughout New Jersey and New York that will consist of an inclusive, accessible athletic activity for children living with Spina Bifida ages 5-21. The program is set to achieve three objectives: combat obesity with adaptive physical activities coupled with food preparation demonstrations that show how to incorporate healthier foods into their lifestyle;  give children with Spina Bifida a sense of belonging with peers that understand their challenges; provide a support network for parents and caregivers who will have opportunities to share concerns and experiences with each other along with medical professionals who will lead certain seminars throughout the year.

SBRN was awarded the grant based on the programs access and day to day quality of life for families and individuals living with Spina Bifida which will enable people to live independent and active lifestyles. The grant funding will cover the six events and seminars along with various recreational activities throughout New Jersey and Metro New York as well as Hudson Valley and Orange County.

Julia McConnell, Executive Director of the Spina Bifida Resource Network states, “This is a tremendous opportunity for the regional community of kids and their families who are living with Spina Bifida”. She added, “It is our way of helping them pave the path to living active lifestyles which can sometimes be challenging when the disability can inhibit you from being proactive to health”.  The program follows the organization’s mission to advocate and empower individuals living with Spina Bifida.

“The Quality of Life grants program Dana envisioned twelve years ago reflects what she always believed in,” said Peter T. Wilderotter, president and CEO of the Christopher & Dana Reeve Foundation. “People living with paralysis have a right to a life with dignity and empowerment. The organizations awarded these grants provide just that to these individuals, their families, and caregivers.”

The Reeve Foundation’s Quality of Life grants are divided into three categories; Actively Achieving, Bridging Barriers and Caring and Coping. Quality of Life grants are funded through a cooperative agreement with the Centers for Disease Control and Prevention (Award #1U59DD000338). These grants are awarded to nonprofit organizations that address the needs of people living with paralysis caused by spinal cord and other injuries, diseases and birth conditions.

The Reeve Foundation is dedicated to curing spinal cord injury by funding innovative research, and improving the quality of life for people living with paralysis through grants, information and advocacy.

The mission of the Spina Bifida Resource Network (SBRN) is to empower the lives of people with Spina Bifida and promote the prevention of Spina Bifida through advocacy, education, collaboration, public awareness, research and programs. For more information about the Spina Bifida Resource Network, please visit www.thesbrn.org or call 908-782-7475.


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