Empowerment Zone Newsletter

Family Support Newsletter of the Spina Bifida Resource Network

The Empowerment Zone is the Family Support Newsletter of the Spina Bifida Resource Network. It offers information on health issues, accessibility, assistive technology, transition, living with Spina Bifida, resources regarding health and living, activities, teleconferences and events at SBRN, inspiration and motivation, and news about programs and assistance. If you would like to receive the newsletter directly in your email, please click the box at the bottom of the page.

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Current and Previous Issues: 

 July/August 2010 Issue

  • Filling In The Gaps:  Make New Choices-Create New Outcomes
  • Other Avenues
  • Resources: Tethered Cord Syndrome
  • Guardianship
  • College Planning and Advising for the Student with Special Needs
  • Health Tips: Getting the Most from Your Doctor Visit
  • Everything You Wanted to Know About Spina Bifida, But Didn’t Know to Ask… Tethered Cord Syndrome
  • What’s Happening at SBRN
  • Teleconferences
  • Adelphia Evening of fun
  • Photos and recap: Walk for Empowerment Spring

May/June 2010 Issue

  • Filling in the Gaps – “Hey Mom, Are You Listening?”
  • Individuals & Families: Living with Spina Bifida
  • Everything You Wanted to Know..“7 Habits of Healthy Happy Caregivers”
  • Health Tips & Resources – “For Caregivers”
  • Save the Date – Walk for Empowerment Spring 2010
  • What’s Happening at SBRN: Teleconferences
  • Announcement for Fall Walk for Empowerment

March/April 2010 Issue

  • Filling in the Gaps – “Are You Aware of Where You Are sitting?”
  • Make a Stand for Available Handicapped Parking
  • Everything You Wanted to Know..“What is the Ace Procedure?”
  • Health Tips & Resources – “Managing Incontinence”
  • Individuals & Families: Living with Spina Bifida
  • Save the Date – Walk for Empowerment Spring 2010
  • What’s Happening at SBRN: Teleconferences

January/February 2010 Issue

  • Filling in the Gaps – “The Beauty of the Small”
  • Special Needs financial Planning
  • Everything You Wanted to Know..“Nutrition and Disability”
  • Health Tips & Resources – “Small Steps to Reduce Calories & Eat Better”
  • Individuals & Families: Living with Spina Bifida
  • Holiday Party 2009 Photos
  • SB Genetics Study
  • What’s Happening at SBRN
  • Taste for Empowerment Recap

November/December 2009 Issue

  • Holiday Party & Adult Retreat Info
  • Embrace Change and the Unknown
  • Dental Care
  • On the Road to Independence: Can You Really Do Anything You Want?
  • SB Genetics Study
  • What’s Happening at SBRN?

September/October 2009 Issue

  • Filling In the Gaps – “Is Disorganization Hiding in your Closet?“
  • Resources – “Wheelchair Sports, Activities, Volunteerism“
  • Everything you wanted to know about Spina Bifida: “Isolation“
  • Health Tips: “Avoid Boredom & Isolation During Bedrest“
  • Transitions: “Raising a Well-Mannered Likeable Child“
  • What’s Happening at SBRN

July/August 2009 Issue

  • Filling In the Gaps: The Importance of Art, Nature, and the Weird
  • Other Avenues
  • Resources: Parenting Siblings of Children with Disabilities & Your Relationship
  • Everything You Wanted to Know About Spina Bifida, But Didn’t Know to Ask: Neurogenic Bladder
  • Health Tips: Healthy Urinary Tract
  • Transitions: What Vision Does the Crystal Ball Hold for You?
  • What’s Happening at SBRN
  • Spring Stroll & Roll Recap and Photos

May/June 2009 Issue

  • Message from Jane Horowitz: Welcome Julia McConnell – New Executive Director
  • Filling In The Gaps: Be Prepared
  • Other Avenues
  • Resources: Resources for Teens & Young People with Disabilities
  • Everything You Wanted to Know About Spina Bifida, But Didn’t Know to Ask: Consitpation & Fecal Impaction
  • Health Tips: 14 Easy Tips for Adding Fiber to Your Daily Diet
  • Transitions: Spare the Rod-Spoil the Child’s Independence?
  • What’s Happening at SBRN

March/April 2009 Issue

  • Filling In the Gaps: Invoke Your Warrior Spirit
  • Other Avenues
  • Resources: What is Structural Yoga Therapy?
  • Everything You Wanted to Know About Spina Bifida, But Didn’t Know to Ask: Spina Bifida Physical Activity Guidelines
  • Health Tips: Add Physical Activity to Your Daily Life
  • Transitions: Build a Lifelong Healthy Habit of Physical Activity
  • What’s Happening at SBRN

January/February 2009 Issue

  • Filling In the Gaps: “In the Beginner’s Mind There are Many Possibilities, But in the Expert’s There are Few”
  • Other Avenues
  • Everything You Wanted to Know About Spina Bifida, But Didn’t Know to Ask: Individualized Health Plan
  • Health Tips: How to Be Prepared and Maintain Self-Care When Away from Home
  • Transitions: Transition from High School
  • What’s Happening at SBRN

November/December 2008 Issue

  • Filling In the Gaps: “Resistance is Futile”
  • Other Avenues
  • Resources: Mobility Technology & Information
  • Everything You Wanted to Know About Spina Bifida, But Didn’t Know to Ask: Wheelchairs
  • Transitions: Teach Your child How to Maintain Their Equipment
  • What’s Happening at SBRN: Stroll & Roll Photos

September/October 2008 Issue

  • Filling In the Gaps: “Are You Nurturing Pain or Frustration?”
  • Other Avenues
  • Resources: Orthopaedics & Spina Bifida
  • Everything You Wanted to Know About Spina Bifida, But Didn’t Know to Ask: Spina Bifida and Orthopaedic Conditions
  • Health Tips: Tips on Bracing
  • Transitions: Techniques for Improving Independence at Home
  • What’s Happening at SBRN

August 2008 Issue

  • Filling In the Gaps: “Exercise is Not a Dirty word”
  • Other Avenues
  • Resources: Health, Happiness & Self-care
  • Everything You Wanted to Know About Spina Bifida, But Didn’t Know to Ask: Obesity
  • Health Tips: Tips on Bracing
  • Transitions: Teaching Self-Maintenance
  • What’s Happening at SBRN: Regional Conference Photos

March/April 2008 Issue

  • Filling In the Gaps: “Consciously Make Life Easier”
  • Other Avenues
  • Resources: Assistive Technology
  • Everything You Wanted to Know About Spina Bifida, But Didn’t Know to Ask: Spina Bifida & The Bowel
  • Health Tips: How to Avoid Constipation
  • Transitions: Parents Need to Encourage Independence from the Beginning
  • What’s Happening at SBRN

January/February 2008 Issue

  • Filling In the Gaps: “Problem solving & Being Part of the Solution”
  • Other Avenues
  • Resources: Self-Care, Self-Management, self-Advocacy
  • Everything You Wanted to Know About Spina Bifida, But Didn’t Know to Ask: Spina Bifida & Cognitive and Neurological Issues
  • Health Tips: Self-Care
  • Transitions: Introduction to Transitions
  • What’s Happening at SBRN: Holiday Photos