Author Archives: Editor

2011 Recap: SBRN Receives a Reeve Foundation Grant Towards an Accessible Kids on the Move Program

Flemington, NJ: (AUGUST 2, 2011) The Spina Bifida Resource Network (SBRN), a 501 c 3 organization that services children, adults and their families who live with Spina Bifida in New Jersey and Metro New York announced today that it has been awarded a Quality of Life Grant through the Christopher and Dana Reeve Foundation in […]

Study: Fetal Surgery Best for Spina Bifida

Wednesday, February 9 2011: Diane Sawyer of ABC World News Tonight and Brian Williams of NBC Nightly News announced the success of  “The 10 Year Fetal Surgery Study” done for babies with Spina Bifida.
Please take a look at the links below for more information about the study and let us know what you think.

The Spina Bifida Resource Network Promotes January Folic Acid Awareness Month

Flemington, NJ (December 14, 2010) — Eight babies are born every day in the United States with Spina Bifida or a similar neural tube defect. The Spina Bifida Resource Network (SBRN) is working with the goal of highlighting reduced occurrences of the birth defect during the month of January to promote “Folic Acid Awareness Month” […]

SBRN Family Member Earns Highest Rank in Scouts

Source: Township Journal Papers, Sussex County New Jersey January 6, 2010
STANHOPE — Jenna Wilson, a junior at Lenape Valley Regional High School, recently achieved her Girl Scout Gold Award, the highest award a Girl Scout can earn.
The award requires the completion of leadership development, career exploration, and community service projects. The final component is a […]

SBRN Executive Director Speaks at New Jersey Department of Human Services Budget Forum

Flemington, NJ: On December 3, 2009 the Executive Director of the Spina Bifida Resource Network, Ms. Julia McConnell appeared at the New Jersey Department of Human Services Budget Forum in Trenton.
Ms. McConnell stated that she was fearful the current economic climate  may cause cuts in services can lead to poor care associated with Institutionalization that […]