SBRN began in the 1970’s, when parents of children with spina bifida formed self-help groups to address the emotional strain and financial expense of caring for children with special needs. The Spina Bifida Coalition was founded in 1982, was recognized as exempt under 501(c)(3) in 1987 and became the Spina Bifida Association of NJ in 1992. In 2008, we restructured to become an independent nonprofit organization and our name changed to the Spina Bifida Resource Network. Our focus is on individuals, caregivers, and families in NJ living with spina bifida and other physical, intellectual and developmental disabilities.
SBRN services are unique and personalized, with focus on addressing individuals’ needs in the moment. These services are not offered by Medicaid or other insurance; however, they are greatly needed and beneficial in supporting health and independent living.