WELCOME TO

THE SPINA BIFIDA RESOURCE NETWORK

About SBRN

The Spina Bifida Resource Network (SBRN) is dedicated to enhancing the lives of individuals with Spina Bifida through advocacy, education, and support services. Our mission is to provide educational resources, social events, and advocacy programs that empower people with disabilities and their allies to challenge perceptions, embrace interdependence, and live their best lives. 

For more information about SBRN and how we support the community, please contact us at info@thesbrn.org of call us at 908-782-7475. We are here to help you with your questions, connect you with resources, and welcome you into our network. 


SBRN 2026 Walk for Empowerment Raises More Than $13,200

The Spina Bifida Resource Network (SBRN) is thrilled to share that, thanks to the generosity of our community, the 2026 Walk for Empowerment raised more than $13,200 in support of individuals and families living with spina bifida.

Nearly 90 participants, families, friends, volunteers, and sponsors joined us for a beautiful day filled with encouragement, connection, and community spirit. Together, we celebrated not only the funds raised, but the strength and commitment of everyone who believes in creating opportunities and improving lives.

Every Dollar Makes a Difference

Every dollar raised helps support SBRN’s programs, resources, advocacy efforts, and community opportunities for the individuals and families we serve. Your support ensures that people living with spina bifida have access to education, peer connections, information, and programs that empower them to live independently and thrive.

Congratulations to Our Top Fundraisers!

We are proud to recognize our leading fundraising teams:

🏆 Team Millie
🏆 Team Ossi

Your dedication and enthusiasm inspired others and helped make this year’s walk a tremendous success.

Thank You to Our Volunteers and Participants

From those who walked and fundraised to the volunteers who helped make the day run smoothly, your time, energy, and commitment made this event truly special. The smiles, laughter, and sense of community shared throughout the day are a testament to the incredible SBRN family.

Thank You to Our Sponsors

We extend our sincere appreciation to our sponsors whose generosity and partnership helped make the 2026 Walk for Empowerment possible. Your support strengthens our mission and expands our ability to serve individuals and families affected by spina bifida.

Together, We Are Making a Difference

Thank you again for being part of this special event and for helping us make a meaningful impact in the lives of others.

Empowering Independence. Building Community.

We look forward to seeing you again next year! 💙💛

Introducing "Unstoppable" - A New Teen Program

We are excited to launch Unstoppable, a new pilot program created especially for teens ages 13–20 with Spina Bifida and similar disabilities.

Unstoppable is a peer-based program designed to provide a welcoming, supportive space where teens can:

  • Build friendships and connect with others who share similar experiences
  • Grow confidence and independence
  • Strengthen self-advocacy skills
  • Support their emotional well-being
  • Try new activities in a safe, judgment-free environment

đź“… Next Gathering:

Sunday, May 31st ( Following Empowerment Walk) 

Approx. start time: 1;30 PM 

Roosevelt Park, Edison, NJ 

Registration is required, and must be completed by a parent or guardian. Space is limited for this pilot program, so we encourage early registration.

👉 Click here to download the event flyer for full details and registration information.

Questions?

Email: info@thesbrn.org

Phone: 908-782-7475

Program Leader: Andrea Bachmann-Brady -570-234-6957 or email:  onecrazygreek1970@yahoo.com

We are thrilled to bring this opportunity to our community and look forward to seeing teens connect, grow, and thrive.

WHO WE ARE

The Spina Bifida Resource Network (SBRN) provides services and programs to children, adults and families living with spina bifida and other disabilities in NJ and beyond. We provide peer-led support groups and programs, educational and recreational events, financial assistance, resources and advocacy. Our services and programs are geared towards increasing knowledge, self-care, capabilities and independence, along with building supportive communities.

SPINA BIFIDA PROGRAMS & SERVICES

Our mission is to empower the lives of people living with Spina Bifida, through:

LIVING WITH SPINA BIFIDA

Spina Bifida is one of the most common, permanently disabling birth defects in America. It occurs when the neural tube, which forms the spinal cord and vertebral column, does not close completely during the first several weeks after conception. Each year about 1,500 pregnancies are affected by Spina Bifida in the US.

Living with Spina Bifida is different for every person. The spectrum of disability ranges from mild to severe.  People with spina bifida often need many surgeries over their lifetime and have lifelong disabilities, including paralysis in the lower parts of the body, mobility challenges, and loss of bladder and bowel control.

Most children with spina bifida can and do live long productive lives, thanks to advanced medical techniques and support systems.

SBRN has resources on numerous topics related to Spina Bifida and living with disabilities.

SPINA BIFIDA NEWS & EVENTS

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EMPOWERMENT ZONE

SBRN's Newsletter

6 - M & E for homepage what is spina bifida

WHAT IS SPINA BIFIDA

Watch our Spina Bifida animation

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